This month we're swimming in disability pride! The boy is going to Hole in the Wall Gang Camp this week by himself. Next week we're going to Camp Sunshine as a family for their brain tumor week and the following week both kiddos will be going to Double H Ranch. All are summer camps (and more) for kids for serious illnesses. All are 100% free.
In the wake of the boy's first brain surgery I didn't know how to cope. I retreated inside myself. I didn't want to have "my people," I wanted to be by myself, alone, in the dark.
But slowly over the course of years I've found so much strength in being with "our people" as a part of communities that have grown up around these get togethers. It's so heartening to just be with folks who get it and be in a safe space where everyone, no matter their support needs can raise some hell in the woods, whether it's all-abilities horseback riding or adaptive skiing.
That’s so exciting. I love that these camps so regularly include the larger family. It is good to be around other people with different needs. I loved the disability art group I used to attend. It was one of the first spaces I wasn’t self conscious about how I hold a pen, for instance.
Happy disability pride. We are tenacious. We show up anyway. We adapt. We are resilient. We are still here and we are not going away. Thank you for sharing your story.
Your memoir is such a daring, layered, amazing piece of work. It's awesome to watch it growing.
ditto this times one million. You are a glorious, incredible writer (and all around human).
Right back at you! I wouldn’t be half the writer without you in my corner.
Thank you Kris. My memoir is all the better because you’ve been reading it. I’m endlessly grateful!
<3 the baby Elizabeth photos.
This month we're swimming in disability pride! The boy is going to Hole in the Wall Gang Camp this week by himself. Next week we're going to Camp Sunshine as a family for their brain tumor week and the following week both kiddos will be going to Double H Ranch. All are summer camps (and more) for kids for serious illnesses. All are 100% free.
In the wake of the boy's first brain surgery I didn't know how to cope. I retreated inside myself. I didn't want to have "my people," I wanted to be by myself, alone, in the dark.
But slowly over the course of years I've found so much strength in being with "our people" as a part of communities that have grown up around these get togethers. It's so heartening to just be with folks who get it and be in a safe space where everyone, no matter their support needs can raise some hell in the woods, whether it's all-abilities horseback riding or adaptive skiing.
That’s so exciting. I love that these camps so regularly include the larger family. It is good to be around other people with different needs. I loved the disability art group I used to attend. It was one of the first spaces I wasn’t self conscious about how I hold a pen, for instance.
I love you.
I love you too! ❤️
I admire your strength, wit, dexterity, and savvy (not to mention your writing skills)! Thank you for letting us in!
Thanks for letting me in! ❤️
Happy disability pride. We are tenacious. We show up anyway. We adapt. We are resilient. We are still here and we are not going away. Thank you for sharing your story.
Happy disability pride to you too! Tenacious is a great word for us.
I’m so proud of you my beautiful girl
Thanks Mom, love you!